KRN Patient Registry
The KRN hosts a patient registry focused on one of the major causes of kidney disease—glomerular kidney disease. Participants from 7 clinical centers around the U.S. consent to share their electronic health record data. The goal of the registry is to better understand the causes of these diseases, response patterns to different medications, and how these diseases progress over time.
Research questions are brought forward and prioritized by the Registry Steering Committee. Data domains available include: laboratories, medications, diagnosis, procedures, biopsy information, vitals, demographics, and transplant data. To submit a research question, please complete the brief KRN ancillary study application.
Read more about how the data is used here.
Analytics to support research questions