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Opportunity for individuals impacted by
Nephrotic Syndrome

Do you or someone you know have Nephrotic Syndrome or related kidney disease such as Minimal Change Disease, FSGS, IgM Nephropathy, or Membranous Nephropathy?

Researchers are studying people’s experiences with swelling, or edema, and want to learn from those
impacted by Nephrotic Syndrome. The information collected from the interviews will be used to develop
a survey to use when testing new medications for Nephrotic Syndrome. Learn more about the Prepare-NS project here.

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If you are interested or would like more information, please contact the Prepare-NS team by calling 734-232-4830 or emailing

The study is sponsored by the U.S. Food and Drug Administration and conducted by researchers from the University

of Michigan and Northwestern University. It has been approved by The University of Michigan Institutional Review Board HUM00208148.

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