Registries and Cohorts

• KRN Patient Registry [Learn more!]

• RESOLVE: Recurrent FSGS registry and biobank [Learn more!]

• Kidney Mobile Health Study [coming soon!]

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Surveys and Interviews

• Interviews with people impacted by nephrotic syndrome [Learn more!]

• Health and Economics in Nephrotic Syndrome [enrollment complete]

• Validation and scoring of Minimal Change Disease & FSGS PRO measures [enrollment complete]

• Adult FSGS patient reported outcomes validation study [enrollment complete]

• Minimal Change Disease & FSGS Patient Reported Outcome Development  [enrollment complete]

• Development of a clinician reported outcome for edema in nephrotic syndrome [enrollment complete]

• Standardized Outcomes in Nephrology (SONG) [enrollment complete]

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​Clinical Trials

• Evaluation of BI 764179 for safety and effectiveness in patients with FSGS [enrollment complete!]

• Precision Medicine in FSGS and Minimal Change Disease  [enrollment complete!]

• Prednisolone in young children with nephrotic syndrome   [enrollment complete!]

• FIRSTx trial for focal segmental glomerulosclerosis (FSGS)  [enrollment complete!]

 

Other Research

• Anticoagulation and anti-platelet prescribing in glomerular disease: An observational study​

 

Select Completed Projects using KRN Data

• Proteinuria Reduction and Kidney Survival in Focal Segmental Glomerulosclerosis​ 

• Association between psychiatric disorders and glomerular disease 

• Immunization practices among children with nephrotic syndrome 

• Validation of a computable phenotype algorithm to identify nephrotic syndrome patients from electronic health records 

• Time to initiation of anti-hypertensive therapy after onset of elevated blood pressure in patients with primary proteinuric disease 

• Steroid-associated side effects in patients with primary proteinuric kidney disease 

• An Outcomes-Based Definition of Proteinuria Remission in Focal Segmental Glomerulosclerosis

• Changing the Paradigm for the Treatment and Development of New Therapies for FSGS

• Development of FSGS PRO Measures

• Randomized Clinical Trial Design to Assess Abatacept in Resistant Nephrotic Syndrome

• Optimizing Enrollment of Patients into Nephrology Research Studies

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For more information, visit ClinicalTrials.gov, a search engine of publicly and privately

supported clinical studies conducted around the world.