​Clinical Trials

• Precision Medicine in FSGS and Minimal Change Disease [Learn more!]

• Evaluation of BI 764179 for safety, effectiveness, and side effects in patients with FSGS [Learn more!]

• Prednisolone in young children with nephrotic syndrome   [enrollment complete!]

• FIRSTx trial for focal segmental glomerulosclerosis (FSGS)  [enrollment complete!]​

​

Surveys and Interviews

• Interviews with people impacted by nephrotic syndrome [Learn more!]

• Health and Economics in Nephrotic Syndrome [enrollment complete]

• Validation and scoring of Minimal Change Disease & FSGS PRO measures [enrollment complete]

• Adult FSGS patient reported outcomes validation study [enrollment complete]

• Minimal Change Disease & FSGS Patient Reported Outcome Development  [enrollment complete]

• Development of a clinician reported outcome for edema in nephrotic syndrome [enrollment complete]

• Standardized Outcomes in Nephrology (SONG) [enrollment complete]

​

​

Registries and Cohorts

• KRN Patient Registry [Learn more!]

• Recurrent FSGS registry and biobank [Coming soon!]

​

Other Research

• Anticoagulation and anti-platelet prescribing in glomerular disease: An observational study

• Association between psychiatric disorders and glomerular disease

• Immunization practices among children with nephrotic syndrome

• Validation of a computable phenotype algorithm to identify nephrotic syndrome patients from electronic health records

​

Select Completed Projects

• Proteinuria Reduction and Kidney Survival in Focal Segmental Glomerulosclerosis​

• Time to initiation of anti-hypertensive therapy after onset of elevated blood pressure in patients with primary proteinuric disease

• Steroid-associated side effects in patients with primary proteinuric kidney disease

• An Outcomes-Based Definition of Proteinuria Remission in Focal Segmental Glomerulosclerosis

• Changing the Paradigm for the Treatment and Development of New Therapies for FSGS

• Development of FSGS PRO Measures

• Randomized Clinical Trial Design to Assess Abatacept in Resistant Nephrotic Syndrome

• Optimizing Enrollment of Patients into Nephrology Research Studies

• See more here

​

For more information, visit ClinicalTrials.gov, a search engine of publicly and privately

supported clinical studies conducted around the world.