Current Research & Trials

​Clinical Trials

• Precision Medicine in FSGS and Minimal Change Disease [Learn more!]

• Prednisolone in young children with nephrotic syndrome   [enrollment complete!]

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Surveys and Interviews

• Health and Economics in Nephrotic Syndrome [Participate Now!]

• Validation and scoring of Minimal Change Disease & FSGS PRO measures

• Adult FSGS patient reported outcomes validation study [enrollment complete]

• Minimal Change Disease & FSGS Patient Reported Outcome Development  [enrollment complete]

• Development of a clinician reported outcome for edema in nephrotic syndrome

• Standardized Outcomes in Nephrology (SONG)

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Registries and Cohorts

• KRN Patient Registry

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Other Research

• Anticoagulation and anti-platelet prescribing in glomerular disease: An observational study

• Association between psychiatric disorders and glomerular disease

• Immunization practices among children with nephrotic syndrome

• Validation of a computable phenotype algorithm to identify nephrotic syndrome patients from electronic health records

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Select Completed Projects

• Proteinuria Reduction and Kidney Survival in Focal Segmental Glomerulosclerosis​

• FIRSTx trial for focal segmental glomerulosclerosis (FSGS)  [enrollment complete!]

• Time to initiation of anti-hypertensive therapy after onset of elevated blood pressure in patients with primary proteinuric disease

• Steroid-associated side effects in patients with primary proteinuric kidney disease

• An Outcomes-Based Definition of Proteinuria Remission in Focal Segmental Glomerulosclerosis

• Changing the Paradigm for the Treatment and Development of New Therapies for FSGS

• Development of FSGS PRO Measures

• Randomized Clinical Trial Design to Assess Abatacept in Resistant Nephrotic Syndrome

• Optimizing Enrollment of Patients into Nephrology Research Studies

• See more here

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For more information, visit ClinicalTrials.gov, a search engine of publicly and privately

supported clinical studies conducted around the world.

Registry Hosting

Nephrology Research

Analytics to support research questions

FSGS

Clinical Trials