Data Warehouse and Analytics
The KRN Data Warehouse is an ongoing data collection and storage effort using a combination of retrospective and prospective data.
Data sources include:
KRN patient electronic medical record data
Active research study data
Completed clinical trial data sets
Patient Reported Outcomes data
Other data relevant to KRN
Patients enrolled in the Network Registry consent to share portions of their health record data with study investigators. This includes information about diagnoses, treatment, and laboratory tests. This type of data collection allows investigators to perform important epidemiological research and statistical analyses at a much lower cost by leveraging existing medical record information.
How will the data be used?
Provide a community and hospital perspective of kidney disease
Identify health problems that need new solutions (inform future research priorities)
Assist in the development of clinical trials protocols
Locate promising site trials
Generate patient quality of care reports for site use
Analytics to support research questions