Outcomes & Endpoints

Identifying and developing endpoints necessary for use in clinical trials is a cornerstone of KRN's work. Relevant, achievable endpoints include clinical and patient reported outcomes.

 

For published work on this topic, click here

 

Patient reported outcomes (PRO) are measures that help to collect information directly from patients about how they feel and function. Clinician reported outcomes (ClinRO) standardize historically subjective assessments to support trial conduct and clinical care.

The Nephrotic Syndrome PRO Consortium is part of the Kidney Research Network and is directed in partnership with NephCure Kidney International (NKI), academic and industry experts. 

Available Measures

  • FSGS PRO v1.0 (ages 18+)

  • FSGS/MCD PRO v2.0 (ages 8+)

  • ClinRo-Edema (all ages)

Under Development

  • NS ObsRO (ages less than 8)

 

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more information

Kidney Research Network   2020

 

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